Her name is Duangjay Samaksamam, for over 50 years now, she has been suffering from a rare and painful condition that makes her limbs swell permanently.
A new series by Body Bizarre experts believes that Samaksamam is the only person in the world to suffer the rare condition known as macrodystrophia lipomastosa which develops from shoulders to fingers on both arms.
The 59-year-old has talked about how embarrassed she is by her condition. She never went to school as she spent the first 20 years of her life as a recluse - she was ashamed of herself.
But afterwards, she was forced to come out of hiding and look for a way to earn a living as her parents were getting older.
"My hands are so heavy I can barely lift them to comb or shampoo my hair, it's very difficult. Getting dressed is also very difficult and painful," she said.
"Some doctors said the only solution was to cut off my hands if I wished to walk around freely. But I don't want to do that.'They removed about 700 grams of fat and blood out of my hands but after a month it just grew back," she added.
Plastic surgeon Dr Eiju Uchinuma said:
"This case is very rare. Both her arms are enlarged. Her arms and hands are enormous so they swell badly but it could be worse.My diagnosis is that she is the first and only person in the world who has Macrodystrophia Lipomatosa from shoulders to her fingers on both arms.
"The cause of the disease is unknown and is therefore incurable"
I CAN IMAGINE HER PAINS, MAY GOD HELP HER
ReplyDeleteOh, so saaaad, may God help her
ReplyDeleteI pray that the lord can help her and that the doctors can find a cure for it
ReplyDelete